My dearest readers,
Some of you are probably wondering where I have disappeared, or even if I have chosen to let go of my blog. I would most certainly not forego the pleasure of entertaining and educating you with relevant brand building stories. I do, however, owe you an explanation as to why I have been rather quiet these last few months. To sum it up in one word, I have been: Glutened.
Gluten was a foreign word to me a few months ago and it is now most likely the most used word in my vocabulary. I have spent the last few months being quite ill and arduously working along with my doctors to find out why. After many tests and scopes, which revealed damage to my small intestine, the answer finally became clear: Celiac Disease, or to simplify this term: a condition that damages the lining of the small intestine and prevents it from absorbing parts of food that are important for staying healthy. The culprit: gluten, which is found in wheat, barley, rye, and possibly oats. Though this condition cannot be cured, the great news is that it can be monitored with a life long gluten-free diet. Goodbye regular breads, pasta, and pastries, hello GF world! (You’d be surprised, GF dining can be quite delicious once you master it). It does get quite tricky when eating in restaurants though since the slightest cross-contamination can be damaging. But one learns to adapt!
I am finally on the road to recovery and have regained full control of my life. One question has always lingered, however: how is it possible that I had never heard of Celiac Disease before my diagnosis?
Here are some substantial statistics related to Celiac Disease: Celiac Disease Facts & Figures
- 1 in 133 Americans are affected.
- 95% of Celiacs are undiagnosed or misdiagnosed with other conditions
- 6 to 10 years is the average time a person waits to be correctly diagnosed
- 5-22% if celiac patients have an immediate family member (1st degree relative who also has celiac)
- Celiac Disease can lead to a number of other disorders including infertility, reduced bone density, neurological disorders, some cancers, and other autoimmune diseases
- The Celiac Disease diagnosis rate may reach 50-60% by 2019, thanks to efforts to raise public awareness (Source: Datamonitor Group, 2009)
- Gluten-Free sales reached more than $2.6 billion by the end of 2010 and are now expected to exceed more than $5 billion by 2015 (Source: Packaged Facts, 2011)
The Road to Awareness:
It is quite clear that there is a lack of awareness of the disease within the medical community and amongst patients. This is in part due to the fact that since no pharmaceutical cure exists other than following a Gluten Free (GF) diet, pharma companies are not investing advertising dollars to raise awareness of this wide spread yet under diagnosed condition. Luckily, individual, non-profit efforts have been gaining share of noise in the media in the last few years. Moreover, a multitude of GF foods are now available in supermarkets and even in some select restaurants.
In fact, my recent move to Toronto has proven to be a wise choice since I have the option of visiting Whole Foods Market for a one stop delicious GF shopping.
In addition, with a simple internet search, I came across a fantastic boutique food shop in North York called Goodbye Gluten. I had the chance to speak with the owner who opened the shop after her daughter’s Celiac diagnosis 15 years ago. Back then, there were no savoury GF choices, and so she bravely catered a store to those suffering from a gluten allergy or sensitivity. I thought I had to make peace with never eating a cupcake again… but low and behold, Goodbye Gluten offers a wide variety of baked goods, including Delicious (yes with a capital D!) cupcakes and cakes.
Packaged Goods brands have also embraced this Gluten Free reality and rising concern amongst consumers and now offer a wide range of GF alternatives. The most exciting recent GF introduction is that of Gluten Free… wait for it… Rice Krispies! They are absolutely delicious and taste just like the original iconic cereal. Celiacs are always looking for tasty snacks and new Rice Krispies Brown Rice gluten-free from Kellogg’s make a wonderful ingredient for tasty recipes!

Source for Celiac related news:
Facebook has become my source for being up to speed with news regarding Celiac Disease. I am a fan of various Celiac Disease research centres, non-profit organizations and even food brands that cater to this topic.
http://www.facebook.com/CureCeliac
http://www.facebook.com/gluten freely
http://www.facebook.com/enjoylifefoods
http://www.facebook.com/CeliacDiseaseFoundation
http://www.facebook.com/CeliacHandbook
Hollywood and Celiac Disease:
Last but not least, it is humbling to see celebrities affected by the disease who are doing everything possible to raise awareness. You’d probably be surprised to know that the following stars and public figures all suffer from Celiac Disease:
- Zooey Deschanel, Jennifer Esposito, Chelsea Clinton, Keith Olbermann, Dean McDermott, Emma Rossum, Novak Djokivic, Elizabeth Hasselbeck, Danni Minogue, even JFK was suspected to have Celiac Disease!
If you know someone who is suspecting Celiac Disease to be the culprit of their symptoms, encourage them to request testing from their doctors. Stay tuned for strategies that I will shortly undertake to help fuel awareness of the disease in the media and within the medical community. Who says Marketing only relates to companies? In my opinion, Celiac Disease has become a brand of its own and we owe it to those suffering from it and to those who are not yet diagnosed to generate awareness through innovative brand building initiatives. Suggestions are welcome!
Stay tuned for my next post! I’ll be running a poll for feedback on your favourite hot topics.
- J.



































